2020 Rare Film Festival
The 2020 Rare Film Festival, hosted by Rare Disease UK, was held in London on February 10th. It was the United Kingdom’s first-ever film festival dedicated to raising awareness of rare diseases.
Over 50 innovative, inspiring, and powerful films were submitted by independent filmmakers, advocacy organizations, pharmaceutical and biotech companies, and others throughout the rare disease community.
A panel of judges selected a winner for each of the festival’s six categories and chose one film, among all entries, to be recognized as Best Picture. In addition, 18 films were selected by the panel to compete for the People’s Choice Award, including…
Getting Together with Duchenne: The Power of Gaming
PTC Therapeutics and CureDuchenne collaborated to produce, “Getting Together with Duchenne: The Power of Gaming,” a fantastic video about how video games can empower individuals living with Duchenne muscular dystrophy.
For me, the primary takeaway from the video was that gaming can be especially impactful on social aspects of Duchenne. Lack of accessibility frequently limits interaction with friends and leads to feelings of isolation. Gaming offers opportunities to engage regularly despite any physical limitations.
The boys are able to experience the thrill of competition, similar to playing sports. The virtual environment of gaming neutralizes physical differences, so they can take on anyone – and win!
Voting Closes on February 28th!
This is an outstanding opportunity for our community to shed light on the realities of living with Duchenne muscular dystrophy. You can help us make the most of it by doing these two things:
- Click the button below to enter your vote.
- Share this blog post on Facebook and encourage your friends to vote too.
Voting is super easy. You don’t have to register, enter your email address, or anything like that. Once you’re on the People’s Choice Award page, all you need to do is check the “Vote Now” box underneath the video, and then click the “Vote” button at the bottom of the page. That’s it!
Rare Disease UK will announce the winner on Rare Disease Day – February 29, 2020