Advocate for DMD
Green Bay, Wisconsin, United States
Jay has been a member of the Duchenne community since his son Andy was diagnosed in 1988. After 32 years in the banking industry, he moved to Green Bay to be Andy’s primary caregiver, a move that he describes as “the best decision I’ve ever made.” His focus has always been on the practical aspects of living a good life despite whatever difficulties Duchenne presents. His goal is to share some of that as a member of the Community Engagement Council.
Families new to the world of Duchenne will always hear the same message from Jay. “Duchenne means that your son’s life will be difficult. But it does not mean that his life will be bad. That part is up to you.”