Child battling muscular dystrophy hugs Trump | DuchenneXchange

welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!

Child battling muscular dystrophy hugs Trump


As President Trump signed the “Right to Try Act” into law Wednesday afternoon, 8-year-old Jordan McLinn of Indiana bashfully attempted to hug the president, who missed his first few tries. After a third attempt, the two embraced.

McLinn has Duchenne muscular dystrophy, a degenerative genetic disease. Symptoms first appear at 3 to 5 years of age, and children afflicted with DMD are likely to be wheelchair-bound by the age of 12. Life expectancy was until recently very short — many did not survive beyond their teen years, according to the DMD website. But advances in care have extended life expectancy into the early 30s and longer in recent years.

Supporters say the legislation Mr. Trump signed Thursday could help McLinn get access to experimental drugs and treatments not yet approved by the Food and Drug Administration (FDA).

 

https://www.duchennexchange.org/wp-content/uploads/2018/06/trump.jpg