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Here’s How I Explain My Experience With Duchenne to Others


Duchenne muscular dystrophy is not easy for people to wrap their heads around. Most haven’t heard of the disease, which is rare and affects about 1.02 males ages 5 to 24 per 10,000 in the United States. When people see me walking, they might think, “He can still walk, so he must be fine.” If I’m in my wheelchair, they might wonder, “He’s in a wheelchair, so what can he do?” Defining my disease and how it affects my daily life will help to dispel any misconceptions that people might have about me and makes those around me more willing to help. 

Explanations of Duchenne can include a lot of scientific jargon. I’m not a scientist, but I’ll try to give you a clear summary of why my body is different.

 

Here’s How I Explain My Experience With Duchenne To Others