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Coping with Duchenne: Parents Swap Stories at ‘Futures’ Conference


Until her son, Will, was diagnosed with Duchenne muscular dystrophy as a 7-year-old, speech pathologist Tiffany Cook had never heard of the disease.

Today, it’s literally her full-time job.

As family resource manager with the nonprofit organization CureDuchenne, Cook — who works from her home in Dallas — helps other moms and dads of newly diagnosed Duchenne boys navigate individualized education programs (IEPs), among other challenges.

Coping With Duchenne: Parents Swap Stories At ‘Futures’ Conference