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CureDuchenne Cares Workshop – Kansas City, Missouri


Please select your registration type (family/caregiver or sponsor) and register all adults/children who plan to attend the workshop. Childcare registration available on confirmation page.


Join us for Insightful Presentations on: 

Standards of Care

Up-to-date care and disease management guidelines across relevant medical disciplines.  


Research and Clinical Trials

Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies.  


Mental Health and Family Support

Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis.



Date & Time:

September 12, 2020 | 08:00 AM – 04:30 PM



Kansas City Marriott Downtown

200 W. 12th St.

Kansas City, Missouri, USA


CureDuchenne Cares Workshop – Kansas City, Missouri