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CureDuchenne Continues Focus as Champions for the Duchenne Community with Launch of Innovative Suite of Online Resources


 

CureDuchenne, the leading global nonprofit focused on funding and finding a cure for Duchenne muscular dystrophy, is rolling out a comprehensive suite of online resources for the Duchenne community.

This suite of resources is aimed at engaging the community to maintain continuity of care and community building in the current times of global health uncertainty:

• Coronavirus Health Update Guide – A comprehensive website resource for families to have a centralized hub of relevant information ranging from physical therapy tips and tricks, to updates from Pharmaceutical companies on drug supplies and a Q&A portal where families can pose questions and obtain professional answers quickly.

• Professional Therapist Online Courses – The courses, led by experts in Duchenne, focus on educating therapists in the areas of diagnosis, care and disease progression. As telemedicine becomes more ubiquitous, the trained therapist will be able to use these skills to treat patients from home, and when the time allows, in clinic.

 

CureDuchenne Continues Focus As Champions For The Duchenne Community With Launch Of Innovative Suite Of Online Resources