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Dealing for Duchenne – San Antonio was inspired by our oldest son Joshua who was diagnosed with Duchenne muscular dystrophy at age 5. It was hard to comprehend why our loving, caring and big-hearted son would be thrust onto this fatal path. It was a very difficult time for us as we dealt with accepting that our son would not be like other children. He wouldn’t be able to jump, run, skip or play tag. But most of all, we feared he would lose his life to this disease.
We learned more about the Duchenne community and all the progress that had already been made. In this, we found CureDuchenne, a national non-profit that has been leading the effort in finding a cure for Duchenne. CureDuchenne has been working on accelerating potential life-saving therapies for all boys with Duchenne for more than 15 years.
Save the Date:
A Virtual Night of Hope
Saturday, October 17, 2020
RARE Patient Advocacy Virtual SummitEach year Global Genes convenes one of t...
Run Out Duchenne 5KSupport the Duchenne Warriors Foundation...
The Ryan’s Quest Valentine BallThe Ryan's Quest will organize 2020 Vale...
PTC Therapeutics Announces Winners of Global Duchenne Muscular Dystrophy Patient Group STRIVE Awards in Recognition ...PTC Therapeutics, Inc. is pleased to a...
11th Annual Golf Fore a CureJoin us for a golf tournament to raise m...
Braedan’s Bridge StoreBraedan's Bridge’s mission is to raise...