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DMD Expert Advises Parents: ‘How to Talk to School, Family and Kids About Duchenne’

If there’s anyone who knows a thing or two about how to discuss Duchenne muscular dystrophy (DMD) with your son, his siblings, his teachers and his friends, it’s James Poysky.

A clinical psychologist in Katy, Texas, Poysky teaches at Houston’s Baylor College of Medicine and chairs a muscular dystrophy expert panel coordinated by the Centers for Disease Control and Prevention. He’s also the father of a 16-year-old with the disease.

Clinical psychologist James Poysky advises parents how to talk about Duchenne at school, with family and with children. Poysky spoke at PPMD’s June 2019 conference in Orlando. “When it comes to talking about this topic, a lot of times the discomfort is from the adult,” Poysky told 850 delegates attending Parent Project Muscular Dystrophy’s 2019 Annual Conference, held recently in Orlando, Fla. 


DMD Expert Advises Parents: ‘How To Talk To School, Family And Kids About Duchenne’