welcome to DuchenneXchange- a positively charged Duchenne muscular dystrophy community.
- join today!
Early 2018, an update on the International Care Considerations was published in the Lancet (Neurology). During the Duchenne Care Conference, the most relevant topics of these updated Care Considerations will be presented followed by discussions on the implementation of the Standards of Care.
September 7, 2018
OBA, the Amsterdam Public Library
Oosterdokskade 143, 1011 DL Amsterdam, next to the CS Amsterdam
Clinicians: € 95
Other health care professionals: € 45
Participants: Clinicians and other health care professionals
American Association of Neuromuscular & Electrodiagnostic Medicine Annual MeetingThe AANEM Annual Meeting is the premie...
EPNS Congress 2019Greece will be hosting the 13th EPNS Con...
Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial ca...Improvements in the function, quality of...
2018 Duchenne Care ConsiderationsIt is recognized that receiving the best...
Rare diseases and orphan products breakthrough summitThe NORD Rare Summit, which historically...
Compliance to Care Guidelines for Duchenne Muscular DystrophyBackground: International care guidelin...
Impact of three decades of improvements in standards of care on clinical outcomes in Duchenne muscular dystrophyObjective: The last three decades have ...