welcome to DuchenneXchange
- a positively charged Duchenne muscular dystrophy community.- join today!
- login
Patients living longer with Duchenne muscular dystrophy pose new challenge for caregivers
Diagnostic and treatment advances are helping patients with Duchenne muscular dystrophy — one of nine major types of muscular dystrophies that affect males — live into their 30s and beyond, raising challenges in such areas as education, vocation, levels of independence, personal relationships, emotional health, and intimacy. To address these shifting circumstances, as well as reflect promising new treatment options, new guidelines aimed at physicians who care for DMD patients have recently been issued.
The guidelines, also known as care considerations, were funded by the CDC’s National Center on Birth Defects and Developmental Disabilities and recently published as three articles in The Lancet Neurology. They revise recommendations originally published in 2010.
rareRelated
-
Answering the call to serveScouting instills in one the call to ser...
-
Sleep quality of mother-caregivers of Duchenne muscular dystrophy patientsBackground: Sleep disturbance is a comm...
-
Psychosocial Needs and Facilitators of Mothers Caring for Children with Duchenne/Becker Muscular DystrophyCare guidelines for Duchenne/Becker musc...
-
Sleep pattern and spectral analysis of caregiver-mothers of sons with Duchenne muscular dystrophy, and an examinatio...Objectives: Sleep is essential for phys...
-
A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and ParentsThe prognosis for individuals with Duche...
-
Your Voice; Impact of Duchenne Muscular Dystrophy (DMD) on the Lives of FamiliesThe purpose of this study is to improve ...
-
A Guide for Parents: Duchenne Muscular Dystrophy UKDuchenne muscular dystrophy is a life-sh...
