Patients living longer with Duchenne muscular dystrophy pose new challenge for caregivers | DuchenneXchange

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Patients living longer with Duchenne muscular dystrophy pose new challenge for caregivers


Diagnostic and treatment advances are helping patients with Duchenne muscular dystrophy — one of nine major types of muscular dystrophies that affect males — live into their 30s and beyond, raising challenges in such areas as education, vocation, levels of independence, personal relationships, emotional health, and intimacy. To address these shifting circumstances, as well as reflect promising new treatment options, new guidelines aimed at physicians who care for DMD patients have recently been issued.

The guidelines, also known as care considerations, were funded by the CDC’s National Center on Birth Defects and Developmental Disabilities and recently published as three articles in The Lancet Neurology. They revise recommendations originally published in 2010.

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