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RARE on the Road – Interactive Webinar

Participants will engage in interactive tutorials on how to tell their rare story and how to get involved in advocacy. This event is open to all rare disease community members and will feature special guest speakers, including a rare disease patient and a policy expert.


Date & Time:

June 23, 2020

11:00 AM ET- 1:30 PM ET


This event has ended.

RARE On The Road – Interactive Webinar