welcome to DuchenneXchange- a positively charged Duchenne muscular dystrophy community.
- join today!
The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!
In order to enable more advocates to attend, the EveryLife Foundation and Global Genes will offer a limited number of $150 travel stipends for each event. Rare disease patients and caregivers who otherwise would not be able to attend will need to apply for the stipend. Applicants will be notified of their application status one month prior to the date of their selected event.
July 13, 2019
8:30 AM-4:30 PM
The Dakota Room
Sanford Research Center
2301 E 60th Street North
Sioux Falls, South Dakota, United States
This event has ended.
Navigating School for Individuals with DuchenneSchool can be an exhausting experience f...
Ride Out DuchenneJason will be taking part in the 65km cy...
Hope for Gus FoundationHope For Gus Foundation was founded by p...
Andy Turns 34 and He Battles Duchenne Muscular Dystrophy!https://www.youtube.com/watch?v=_id8zkvf...
DMD Expert Advises Parents: ‘How to Talk to School, Family and Kids About Duchenne’If there’s anyone who knows a thing or...
The Art of Asking for HelpMy mom used to shake me awake in the mor...
joinourboysThe Join Our Boys Trust’s ultimate aim...