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RARE Patient Advocacy Summit


The RARE Patient Advocacy Summit is the can’t-miss event of the year for rare disease stakeholders. The Summit will take place September 21-23, 2020, at the Sheraton San Diego Hotel & Marina in San Diego, California, and is the largest gathering of rare disease patients, advocates and thought leaders worldwide.

The RARE Patient Advocacy Summit offers many unique opportunities to support the rare community by participating in the largest educational event for rare patients and advocates. Join Global Genes, partners and rare disease community members from all walks of life to become equipped with the tools needed to persevere and thrive on our paths forward!

RARE Patient Advocacy Summit