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Riding for His Son’s Life: Figueres Joins ‘Race to End Duchenne’

Birthdays, Christmas, Valentine’s Day—four-year-old Agustin “Agus” Figueres loves looking forward to celebrations. But his dad, Enzo Figueres, wishes he could slow down time.

On Nov. 26, 2018, Agus was diagnosed with Duchenne muscular dystrophy (DMD), a rare genetic mutation that fatally targets boys and causes progressive muscular deterioration early in life.

“Boys with DMD lose their ability to walk in their teens, and eventually their hearts and breathing muscles give up,” says Enzo. “It’s a lifelong battle and a slow death sentence.”

DMD is the most common fatal genetic disease diagnosed in childhood. To date, there is no cure or treatment to stop its progression. But, as Enzo has discovered, “there is hope on the horizon.”

Riding For His Son’s Life: Figueres Joins ‘Race To End Duchenne’