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Umass Clinic Makes Strides for Duchenne Patients by Integrating Care, Research

The Duchenne Program at University of Massachusetts Medical School celebrated its first anniversary in July, and according to its founding director, pediatric neurologist Dr. Brenda Wong, “It looks like we’ve kind of found our feet.”

The program, with a $6 million, five-year commitment from the nonprofit research organization Charley’s Fund, brings together top clinical and research specialists in a family-centered medical home, attracting patients from as far away as Australia.

It is the first such coordinated program on the East Coast exclusively dedicated to Duchenne, its funding partners say.

The clinic has rapidly gotten up to speed, seeing around 250 active patients, and is moving to bridge complex patient care and, hopefully, advances toward a cure for Duchenne muscular dystrophy, a rapidly progressive, fatal muscle-wasting disease that affects one in every 3,500 boys born.

Umass Clinic Makes Strides For Duchenne Patients By Integrating Care, Research