World Duchenne Awareness Day | DuchenneXchange

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World Duchenne Awareness Day

One in 3,500 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

This year the WDAD’s theme is standards of care. Everybody around the world will raise awareness and money through fundraising and sponsorship. This year the goal of our fundraising effort is to implement these standards of care globally in different ways. One of them will be through the development of educational videos. Education is the first step to implement good standards of care and make Duchenne dreams come true!

September 7, 2018