welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Patient Support Professionals

Kylee Groon

Associate Director of Engagement
1400 Quail Street, Suite 110
Newport Beach, California, United States

Kylee Groon joined CureDuchenne in January 2017 as community Engagement Manager. She is working as Associate Director of Engagement currently. Her role at the organization is to work with Duchenne families near and far to build supportive relationships between them and the organization. She is responsible for engaging Duchenne families, further connecting them to their communities. With the support of Duchenne families all over the nation, Cureduchenne continues to assist in funding treatment for all boys living with Duchenne muscular dystrophy. Kylee comes from a background of strategic communication having a Bachelor of Journalism from University of Missouri. She set her primary educational focus on developing campaigns for non profit organizations while also devoting time to serve both her campus and community. During her college career, she completed internship at Make-A-Wish Orange County and the Inland Empire and Children’s Miracle network- Columbia. In both roles, she gained knowledge of how to work alongside children and families as well as skills in marketing, communications, social media, fundraising and development.