welcome to DuchenneXchange- a positively charged Duchenne muscular dystrophy community.
- join today!
1400 Quail Street, Suite 110
Newport Beach, California, United States
Tiffany Cook joined CureDuchenne in June 2017 as a Family Resource Manager of CureDuchenne. Her role is to create and present family education materials and investigate new ways to help families work with schools, insurance companies, clinicians, and other means of improving the lives of those families living with Duchenne. Tiffany will also be developing and leading fundraising efforts in the southern region of the United States.
Tiffany is a New Orleans native and graduate of the Academy of the Sacred Heart (’90). She earned her BA in Communicative Disorders from The University of Alabama (’94) and MS in Speech Language Pathology from Nova Southeastern University (’97). She began her career in South Florida with continuation in Southern California and North Texas.
When families are told that their child has Duchenne, the world stops. Tiffany’s son, Wil, was diagnosed with Duchenne in 2007. She was confirmed as a Carrier for Duchenne in 2008. From Duchenne, she has learned to live – to live in and for the moment every single day. Duchenne challenges us to think and do things differently. Her twenty plus year career as a school based Speech-Language Pathologist has inspired her to cultivate communicative environments that foster the social and emotional well-being of people. Tiffany resides in Dallas with her husband, son, and daughter.
RARE on the RoadThe EveryLife Foundation and Global Gene...
CureDuchenne Hosts “Futures” Conference in Boston, November 3-4Caregivers of Duchenne muscular dystroph...
Cathy Lazarus, PhD, CCC-SLP, BRS-SDr. Lazarus is the Research Director of ...
Navigating School for Individuals with DuchenneSchool can be an exhausting experience f...
Diagnosis and Management of Duchenne Muscular Dystrophy: A Guide for FamiliesThis Family Guide will provide you with ...
Sierra Christensen, PT, DPT, ATCSchool based services...