joinourboys

rareRelated

• people & places
  Light it Up Green for MD

  Light it Up Green for Muscular Dystrophy...
• people & places
  Jesse’s Journey

  Jesse’s Journey is a partnership of sc...
• evidence & education
  Health-related quality of life in boys with Duchenne muscular dystrophy: Agreement between parents and their sons

  This study investigated agreement betwee...
• social & media
  zachsbattle

  Zachary is 6 and has Duchenne Muscular D...
• rareHub
  Duchenne Muscular Dystrophy < 18y in Norway: Genotype/Phenotype, Growth, Puberty, Bone Health and Quality of Life

  The study will give a consent based epid...
• evidence & education
  Mothers’ psychological adaptation to Duchenne/Becker muscular dystrophy

  Duchenne and Becker muscular dystrophy (...
• news & meetings
  Dublin boy paves the way for new muscle disease treatment

  A Dublin boy has become a pioneer in how...