welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Community Organizations

Action Duchenne

49-51 East Road
London, United Kingdom
Email   Phone   Web  

Action Duchenne’s main aim has always been to find a cure for Duchenne and Becker, to raise awareness through fundraising and campaigning, and to develop the necessary protocols. Action Duchenne continues to fundraise, campaign and provide support and educational expertise to young people and families affected by Duchenne.

Action Duchenne has a team of 10 permanent staff dedicated to meeting the main challenge set by the founders – Dr Janet Hoskin and Nic Catlin : To be a leader in supporting innovative research to cure and treat Duchenne.

Action Duchenne works across the UK, the EU, the US and the southern hemisphere seeking answers and support from all parts of the duchenne community: researchers, clinicians, physicians, pharmacological companies and other duchenne charities.