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Community Organizations

Stand for Duchenne Canada

15 Highcroft Road
Toronto, Ontario, Canada
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Stand for Duchenne Canada is a not-for-profit organization founded by a small group of individuals whose lives have been touched by Duchenne muscular dystrophy. Nicola and Ed Worsfold started the mission to support families like theirs after their son was diagnosed with Duchenne in 2013. As a national, voluntary organization, Stand for Duchenne Canada’s mission is to unite families living with Duchenne to strengthen their lives through advocacy and support.

Stand for Duchenne Canada is supported by corporate and private donors, including educational grants from PTC Therapeutics Inc. and also by several neuromuscular organizations. Stand for Duchenne Canada is a proud member of the Canadian Organization for Rare Disorders.