welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Community Organizations

The Akari Foundation

1113 E. Houston Street
San Antonio, Texas, United States
Email   Phone   Web  

The Akari Foundation is a 501c3 non-profit organization founded by Luisa and Jorge Najera, parents of Ariel and Enrique. Ariel and Enrique are fraternal twins (8 yrs old) who were diagnosed with Duchenne muscular dystrophy in 2016. The Akari Foundation is a Spanish Connection for kids with Duchenne muscular dystrophy.

The foundation has a mission to provide information in Spanish and short term resources to families with children with Duchenne muscular dystrophy, creating a bilingual advocacy, educational, and therapy program. We are determined to create a resource bilingual website, social media, and a first Duchenne physical and occupational therapy bilingual center, regardless of the patient’s ability to pay.