welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Academic & Health Care Centers

The UR Duchenne Muscular Dystrophy Clinic

Box 673
601 Elmwood Ave
Rochester, New York, United States
Email   Phone   Web  

The mission of UR Duchenne Muscular Dystrophy Clinic is to provide evidence-based multidisciplinary clinical care that complies with standards in clinical care established by the Centers for Diseases Control and Prevention to patients of all ages with Duchenne and Becker muscular dystrophy (DBMD).

UR Duchenne Muscular Dystrophy Clinic aims to make impact on the quality of life of children, adolescents, and adults affected by DBMD by providing a team of experts in all specialties needed to best care for DBMD, a friendly and supportive atmosphere, and coordinated care that is highly accessible for families. The clinic focuses on all aspects of disease including a timely diagnosis with genetic confirmation, genetic and family counseling, prevention and management of secondary symptoms and complications, including cardiac, respiratory, behavioral, endocrine and bone health, access to clinical trials, and coordination of care with schools and other providers.