privacy remainder | DuchenneXchange

As noted in our Privacy Policy https://www.duchennexchange.org/legal/ rareLife solutions inc. (“rareLife solutions”), and rareLife solutions’ collaborator, CureDuchenne—a 501(c)(3) non-profit organization with a mission to save this generation of children and adults with Duchenne muscular dystrophy (“CureDuchenne”, together with rareLife solutions “we” or “our” or “us”) collect and use “Personally Identifiable Information” (“PII”) from community members who access or use the website https://www.duchennexchange.org/ (the “Site”), which includes information that identifies an individual personally, such as first and last name, date of birth, postal address, email address, and telephone number. Any PII, including personal health information (e.g., electronic or other health records), that you upload or store on the Site will be subject to the provisions of our Privacy Policy that you agreed to by participating on the Site. Except as otherwise described in our Privacy Policy, we shall not make public or share any of your PII, and we shall use reasonable organizational, technical and administrative measures to help protect against the loss, misuse and alteration of the information under our control. However, no data transmission over the Internet or data storage system can be guaranteed to be 100 percent secure. Please exercise caution in sending us any information you consider confidential. It is your personal responsibility to secure your own copies of your passwords and related access codes for our online resources.

Last Updated: July 27, 2018
rareLife solutions, Inc.
53 Water St, 2nd Floor
South Norwalk, CT 06854
rarelife@rarelifesolutions.com
© 2018 rareLife solutions, Inc. All rights reserved.