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Chill & Distill – Making distilled water at home is easy!
Holding onto Hope – One Mom’s Take on COVID-19
Thank You For Asking
Duchenne Community Events – March 2020
Getting Together with Duchenne: The Power of Gaming
Coronavirus Health Update Guide by CureDuchenneCureDuchenne
Adrenal Suppression From Long Term Use of Steroid in Duchenne Muscular Dystrophy (DMD)NHS Greater Glasgow & Clyde
Transition to Adult Services: Duchenne Muscular DystrophyScottish Muscle Network
Information Leaflet for Patients and Families: Duchenne Muscular DystrophyNHS Foundation Trust
A Message from Debra Miller, Founder and CEO CureDuchenneCureDuchenne
About Genetic CounselingNational Society of Genetic Counselors (NSGC)
Real-World Outcomes of Long-Term Prednisone and Deflazacort use in Patients With Duchenne Muscular Dystrophy: Experience at a Single, Large Care CenterJournal of Comparative Effectiveness Research
One-Year Follow Up of Three Italian Patients With Duchenne Muscular Dystrophy Treated With Ataluren: Is Earlier Better?Therapeutic Advances in Neurological Disorders
Cardiac MRI Biomarkers for Duchenne Muscular DystrophyBiomarkers in Medicine
Liposomal Steroid Nano-Drug is Superior to Steroids as-is in MDX Mouse Model of Duchenne Muscular DystrophyNanomedicine : Nanotechnology, Biology, and Medicine
Applications of CRISPR/Cas9 for the Treatment of Duchenne Muscular DystrophyJournal of Personalized Medicine
Role of Neuronal Nitric Oxide Synthase (nNOS) in Duchenne and Becker Muscular Dystrophies – Still a Possible Treatment Modality?Neuromuscular Disorders : NMD
The Management of Skeletal Health in Boys With Duchenne Muscular DystrophyScottish Muscle Network
Duchenne Muscular Dystrophy Scottish Physiotherapy Management ProfileScottish Muscle Network Physiotherapy Group
Caregiver Considerations for Duchenne Muscular DystrophyPTC Therapeutics, Inc.
Management of Adrenal Insufficiency Risk After Long-term Systemic Glucocorticoid Therapy in Duchenne Muscular Dystrophy: Clinical Practice RecommendationsJournal of Neuromuscular Diseases
Durable Medical Equipment (DME) GuideCureDuchenne
Evaluating implementation of the updated care considerations for Duchenne muscular dystrophyPediatrics
Care Considerations for Duchenne Muscular Dystrophy were published in 2010. However, little is known about the extent to which these considerations were implemented after publication. With this article, we provide direction on evaluating the uptake of the 2018 Duchenne Muscular Dystrophy Care Considerations. We identify key elements of care and present suggestions for their use in evaluation and research.
DMD clinical therapies II: P.135 DMD-HUB: expanding clinical trial capacity for Duchenne muscular dystrophy, 1 year onNeuromuscular Disorders
DMD clinical therapies II: P.133 The burden of participation in a clinical trial for boys with Duchenne muscular dystrophyNeuromuscular Disorders
New therapeutic approaches: I.9 Treatment of Duchenne muscular dystrophy: current efforts, bottlenecks and future prospectsNeuromuscular Disorders
Exhaustive characterization of the newly developed Duchenne muscular dystrophy rat model: a unique animal model for DMD which mimics the human disease at both the muscular and the cardiac levelsNeuromuscular Disorders
Finding clinical meaning in patient-reported functional health: development of the Duchenne muscular dystrophy lifetime mobility scaleNeuromuscular Disorders
The 100-meter timed test: ability to detect change over time in Duchenne muscular dystrophyNeuromuscular Disorders
An Introduction to the Duchenne Muscular DystrophyStatPearls Publishing LLC
Understanding Neuromuscular Disease CareIQVIA Institute Report
eDystrophin : A Database Dedicated to Human Dystrophin VariantsEDystrophin
eDystrophin is a database dedicated to human dystrophin variants produced by in-frame DMD gene mutations. This website takes you from the GENE to the PROTEINS through structural investigation and visualization. It is a locus specific database for in-frame mutations and single-nucleotide polymorphism (SNPs) found in the DMD gene and the associated dystrophin variants.