welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
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Connect with other patients and caregivers

rareCurate find expert physicians, specialists, genetic and nutritional counselors

rareClinical get notified of new research and clinical trials, use the matching wizard!

rareTeam rare Teams share privately

rareTeams allow you to create a small group with whom you can share and communicate exclusively, rather than with the entire community.

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meet the DuchenneXchange team

Curation Advisory Council
CAC curation advisory council
Community Engagement Council
CEC community engagement council
learn more