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The Burden of Access in Duchenne Muscular Dystrophy in the US

key information

study id #: NCT03951675

condition: Duchenne Muscular Dystrophy

status: completed


This study is being conducted to determine if DMD patients / families and healthcare providers experience burdens related to access, and if so, to identify them, and to determine life impacts to the patient, if any, of these burdens. Data from healthcare providers will be collected by an online survey and from patients/families by one on one telephone interview.

mechanism of action: No pharmaceutical intervention

results: https://clinicaltrials.gov/ct2/show/results/NCT03951675

last updated: August 14, 2020