welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
recruiting

The Validation Process for Confirmation of the French Version of the Pediatric Quality of Life Inventory (PedsQLTM)

key information

study id #: NCT03513367

condition: Duchenne Muscular Dystrophy

status: recruiting

purpose:

There isn’t specific Health related quality of life measure for children with DMD in French. The aim of this study is to validate the French version of the Pediatric Quality of Life Inventory 3.0 Duchenne Muscular Dystrophy module with a multicentric study. The investigators will evaluate the following psychometric properties : convergent validity, internal validity, inter-rater reliability. The investigators would like to be able to use this scientific tool in future clinical trials.

intervention:
Duchenne Muscular Dystrophy of the PedsQL ™ 3.0 scale,
The following data of motor function

mechanism of action: No pharmaceutical intervention

results: https://clinicaltrials.gov/ct2/show/results/NCT03513367

last updated: December 04, 2019