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Guides & Guidelines

Caregiver Considerations for Duchenne Muscular Dystrophy

key information

source: PTC Therapeutics, Inc.

summary/abstract:

Because of advancements in the diagnosis and treatment of Duchenne muscular dystrophy (DMD) and how treatment is approached, the 2010 guidelines for the recommendations of care for patients who are affected by Duchenne have been updated.

With the support of the U.S. Centers for Disease Control and Prevention (CDC), the TREAT-NMD network for neuromuscular diseases, Parent Project Muscular Dystrophy (PPMD), and the Muscular Dystrophy Association (MDA), the DMD Care Considerations Working Group (CCWG) was assembled to develop these updated guidelines and recommendations.

The DMD CCWG has reviewed the literature and asked Duchenne experts for their opinions about the necessity and appropriateness of specific assessments and interventions in Duchenne.

 

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