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Patient Education

Delayed Puberty in Duchenne Muscular Dystrophy: For Teens/Children

key information

source: Parent Project Muscular Dystrophy


This information sheet is about delayed puberty in people with duchenne muscular dystrophy. You might want to start by reading the endocrine information sheet, which introduces you to some basic topics. When we say “you” in this information sheet, we mean the person with duchenne. It is important to remember that boys with Duchenne who are on steroids may have some puberty changes in their late teens and twenties. Sometimes the way you look may cause other people to treat you like you are much younger. This may cause you to be concerned. If it does, it is good to talk about how you feel with your parents or someone you trust. You could also talk to someone by yourself in private if you are worried about what people might say or think about you.  

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