Duchenne Muscular Dystrophy- Muscular Dystrophy UK | DuchenneXchange

welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Patient Education

Duchenne Muscular Dystrophy- Muscular Dystrophy UK

key information

source: Muscular Dystrophy UK

authors: Penny Southall

summary/abstract:

“My son, Dan, was diagnosed with Duchenne muscular dystrophy when he was three years old. I know the diagnosis can be devastating.

“Like we did, you may be wondering how you’ll ever come to terms with it. We found our own way of coping and you will too. What kept me going, was telling myself that he was still the same person, but now I knew something different about him. And if he felt OK, I could be OK.

“One of the first things I did after Dan’s diagnosis was to look up research on the quality of life experienced by people with Duchenne muscular dystrophy. Finding out he could have a fulfilling, satisfying life just like anyone else was a great comfort to me at the time, and as the years have gone by I have seen this first-hand.

read more