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Patient Education

Emergency Care Considerations

key information

source: Parent Project Muscular Dystrophy


If your child suddenly becomes sick or injured, it is extremely important that you have the following information with you when talking to the emergency staff.

General Recommendations & Precautions:
-Keep immunizations up to date and get influenza vaccine annually
-People taking daily, long term steroids should avoid live vaccines when possible
-Always wear seat belts – in the car AND the wheelchair/scooter
-Learn more about vaccination recommendations for people with Duchenne

Breathing Problems:
-Risk: Respiratory failure.
-Only give oxygen with close monitoring of CO2 levels; breathing may need to be supported (with BiPAP, for example).
-If oxygen levels are low, assisted coughing (with cough assist machine or Ambu bag) may help.

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