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Guides & Guidelines

Evaluating implementation of the updated care considerations for Duchenne muscular dystrophy

key information

source: Pediatrics

year: 2018

authors: Ong KS, Kinnett K, Soelaeman R, Webb L, Bain JS, Martin AS, Westfield C, Bolen J, Street N

summary/abstract:

Care Considerations for Duchenne Muscular Dystrophy were published in 2010. However, little is known about the extent to which these considerations were implemented after publication. With this article, we provide direction on evaluating the uptake of the 2018 Duchenne Muscular Dystrophy Care Considerations. We identify key elements of care and present suggestions for their use in evaluation and research.

organization: Centers for Disease Control and Prevention, USA; Carter Consulting Inc, USA; Parent Project Muscular Dystrophy, USA; Muscular Dystrophy Association, USA; McKing Consulting Corporation, USA; New York State Health Department, USA

DOI: 10.1542/peds.2018-0333N

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