Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy | DuchenneXchange

welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Guides & Guidelines

Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy

key information

source: PLOS Currents Muscular Dystrophy

year: 2015

authors: Kathi Kinnett, Sunil Rodger, Elizabeth Vroom, Pat Furlong, Annemieke Aartsma-Rus, Kate Bushby

summary/abstract:

Duchenne muscular dystrophy (DMD) is a progressive, life-limiting muscle-wasting disease. Although no curative treatment is yet available, comprehensive multidisciplinary care has increased life expectancy significantly in recent decades. An international consensus care publication in 2010 outlined best-practice care, which includes corticosteroid treatment, respiratory, cardiac, orthopedic and rehabilitative interventions to address disease manifestations. While disease specialists are largely aware of these care standards, local physicians responsible for the day-to-day care of patients and families may be less familiar. To facilitate optimal care, a one-page document has been generated from published care recommendations, summarizing the key elements of comprehensive care for people living with DMD (“Imperatives for Duchenne muscular dystrophy). This document was developed through an international collaboration between Parent Project Muscular Dystrophy (PPMD), United Parent Projects Muscular Dystrophy (UPPMD) and TREAT-NMD.

organisation: Parent Project Muscular Dystrophy, USA; TREAT-NMD, Newcastle University, UK; United Parent Project Muscular Dystrophy (UPPMD), the Netherlands

DOI: 10.1371/currents.md.87770501e86f36f1c71e0a5882ed9ba1

read more