welcome to DuchenneXchange
- a positively charged Duchenne muscular dystrophy community.- join today!
- log in
Patient Education
A Message from Debra Miller, Founder and CEO CureDuchenne
source: CureDuchenne
summary/abstract:Receiving the diagnosis for Duchenne was the scariest time of my life and I know all about the emotions you are feeling. Equipping yourself with the knowledge you need to get the best care for your child is the best thing you can do. Connecting with other families who are going through the same thing can be incredibly helpful as well.
Once I had the confidence that I was going down the right path of care for my son, I founded the nonprofit CureDuchenne and dedicated my life to raising funds to find a cure and to helping other families navigate care and clinical trials. Consider all of us at CureDuchenne as your team that is striving to make the future better for your child.
read more
rareRelated
-
Experiences of Women Who Have Had Carrier Testing for Duchenne Muscular Dystrophy and Becker Muscular Dystrophy Duri...Duchenne muscular dystrophy (DMD) and Be...
-
CureDuchenne: Experts on Duchenne Muscular Dystrophyhttps://www.youtube.com/watch?v=dOhMLZCv...
-
RARE on the Road – Interactive WebinarParticipants will engage in interactive ...
-
Pain characterization in Duchenne muscular dystrophyObjective: To investigate the relations...
-
JAR of HopeJAR of Hope was founded by James Raffone...
-
Defying the Odds of Living With Duchenne, Decade After DecadeWhen it comes to Duchenne muscular dystr...
-
Women in the City of Good Neighbors’ Sheds Light on Duchenne Muscular Dystrophy"You don't want that for your child. Eve...
