Receiving the diagnosis for Duchenne was the scariest time of my life and I know all about the emotions you are feeling. Equipping yourself with the knowledge you need to get the best care for your child is the best thing you can do. Connecting with other families who are going through the same thing can be incredibly helpful as well.
Once I had the confidence that I was going down the right path of care for my son, I founded the nonprofit CureDuchenne and dedicated my life to raising funds to find a cure and to helping other families navigate care and clinical trials. Consider all of us at CureDuchenne as your team that is striving to make the future better for your child.