welcome to DuchenneXchange
- a positively charged Duchenne muscular dystrophy community.- join today!
- login
Patient Education
Pregnancy and Childbirth with Neuromuscular Disease
source: Muscular Dystrophy Association Inc.
authors: Margaret Wahl, Amy Labbe, Miriam Davidson
summary/abstract:When Emma Ciafaloni was preparing to become a neuromuscular disease specialist in the 1990s, and even when she directed the MDA neuromuscular disease clinic at Duke University in the early 2000s, she was stuck by the lack of information she could offer patients who wanted to become pregnant.
“I really have an interest in women and neuromuscular diseases, in what we can do better for them in dealing with their neuromuscular disease and also with pregnancy,” says Ciafaloni, now at the University of Rochester Medical Center, where she sees patients in the MDA clinic and has received MDA research support.
read morerareRelated
-
Reproductive OptionsThere are many different reproductive op...
-
Prioritizing Parental Worry Associated with Duchenne Muscular Dystrophy Using Best-Worst ScalingDuchenne muscular dystrophy (DMD) is a p...
-
Clay Matthews Supports Duchenne Muscular Dystrophy and First Approved Treatmenthttps://www.youtube.com/watch?v=WPu5pGEF...
-
Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adole...The purpose of this study was to evaluat...
-
Sleep pattern and spectral analysis of caregiver-mothers of sons with Duchenne muscular dystrophy, and an examinatio...OBJECTIVES:Sleep is essential for physic...
-
Self-reported quality of life and depressive symptoms in children, adolescents, and adults with Duchenne muscular dy...Aim: We aimed to address the impact of ...
-
Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model ...Background: Duchenne and Becker muscula...