welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
rareCurate
Patient Education

Pregnancy and Childbirth with Neuromuscular Disease

key information

source: Muscular Dystrophy Association Inc.

authors: Margaret Wahl, Amy Labbe, Miriam Davidson

summary/abstract:

When Emma Ciafaloni was preparing to become a neuromuscular disease specialist in the 1990s, and even when she directed the MDA neuromuscular disease clinic at Duke University in the early 2000s, she was stuck by the lack of information she could offer patients who wanted to become pregnant.

“I really have an interest in women and neuromuscular diseases, in what we can do better for them in dealing with their neuromuscular disease and also with pregnancy,” says Ciafaloni, now at the University of Rochester Medical Center, where she sees patients in the MDA clinic and has received MDA research support.

read more

rareRelated