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Guides & Guidelines

Rehabilitation management of the patient with Duchenne muscular dystrophy

key information

source: Pediatrics

year: 2018

authors: Case LE, Apkon SD, Eagle M, Gulyas A, Juel L, Matthews D, Newton RA, Posselt HF


Steadily improving management of Duchenne muscular dystrophy (DMD) continues to lead to improved physical and functional status, allowing increasingly successful transitions to independence and self-actualization in adulthood. Rehabilitation principles remain key to overall management for individuals with DMD with increasing options for ever more successful management, reflecting a changing natural history based on the use of glucocorticoids, more consistent comprehensive care, and the emergence of disease-modifying treatments. Advances and expansion in assessment, cardiorespiratory management, preventive management of contracture and deformity, assistive technology, “smart” technology, and robotics with increased emphasis on function, participation, self-advocacy, and independence in decision-making should allow individuals with DMD to experience childhood and transition to adulthood with support that allows for increasing success in the achievement of individual goals and fulfillment across the life span.

organization: Duke University, Durham, USA; Seattle Children's Hospital, Seattle, USA; Newcastle University, UK; Western Maryland Hospital System, USA; Duke University Health System and Lenox Baker Children's Hospital, USA; Children's Hospital Colorado, USA; Duke University Health System, USA; Muscular Dystrophy Association of Queensland, Australia

DOI: 10.1542/peds.2018-0333D

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