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Patient Education

Transition to Adult Services: Duchenne Muscular Dystrophy

key information

source: Scottish Muscle Network

summary/abstract:

This leaflet has been produced by the Scottish Muscle Network to help young people, families and other professionals involved to understand the particular needs of the young person around health care at the time of transition to adult services. The pediatrician and other children’s healthcare professionals involved will discuss referrals to adult services and make sure these are in place before discharging from children’s services. It is helpful to ask for a copy of this leaflet to be placed in hospital records and sent to the GP.

Before the transition to adult services actually begins, professionals will begin to prepare the young person for the adult service. This may involve a new approach like offering the young person the opportunity to meet with a healthcare professional by themselves for a confidential appointment.

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