Two foundations: One goal...to support Duchenne families | DuchenneXchange

welcome to DuchenneXchange

- a positively charged Duchenne muscular dystrophy community.
  • join today!
Patient Education

Two foundations: One goal…to support Duchenne families

key information

source: Little Hercules Foundation

summary/abstract:

Little Hercules Foundation and Team Joseph have a strong history of working together to fund promising research.  Recently, we decided that while we believe in the promise of future treatments, we also see the need to help families right now.  In this moment.  We identified two priorities—to offer families financial assistance with expenses related to the care of a child or young adult with Duchenne, and to provide help and expertise to families who need access to recommended treatments and equipment, clinical care, and social services.

To work effectively and efficiently, Little Hercules Foundation will provide case management services to patients and caregivers who have been denied access to treatments, clinical care, equipment, and social services. Team Joseph will take the lead on assistance that includes, but is not limited to, purchasing equipment (scooters, manual wheelchairs, shower chairs, etc.), accessible ramps, transportation to clinic visits, vehicle modifications, and home modifications.

 

read more

rareRelated