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Girls living with Duchenne


Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in 50 million girls. It may be rare, but it does happen. We need to raise awareness for girls with Duchenne. In extremely rare cases, females can develop DMD just as a boy would. This might occur when a girl lacks a second X chromosome entirely or if the second X chromosome has sustained serious damage.

We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.