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With help from my friends
My name is Devin Argall. I’m 16 years old and live with Duchenne muscular dystrophy (DMD). DMD is a debilitating genetic disease that progressively weakens muscles. Most boys with DMD end up needing to use a wheelchair around 12 years old and eventually have trouble breathing or develop heart disease, which leads to a shortened life; about 25 years. There is no cure and until last year, there was no treatment. The FDA approved Exondys 51 last September, which will treat about 13% of DMD cases. In February, the FDA approved Emflaza to treat symptoms of DMD, but it only slows the disease progression.
Living with a disease like DMD or any other serious condition or disability can be very difficult for kids to deal with. The effects often extend far beyond the physical ailment and the visible symptoms of the condition. Every area of life is affected to some extent.
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